Wednesday, February 3, 2016

Julia Joy

Julia Joy is 19 weeks old.  She is kicking Lizzie daily and is about the size of a heirloom tomato.  I can't really begin to explain how much this little girl is loved already.

Liz and Tom have just received news that Julia appears to have the same condition as William.   This rare form of fetal anemia is still leaving the finest doctors at the Brigham stumped.  Liz had a scan Monday showing an enlarged heart with fluid developing around it.  This appears to be a more aggressive form than William had since she is showing symptoms earlier in gestation.

The prognosis is poor, however, Lizzie and Tom won't stop fighting for their daughter until they leave every stone unturned.  Nothing is without major risks at this point so now they are weighing all the risks of any procedure.

This news clearly is devastating to our family.  It's seems almost impossibly unfair for Liz and Tom to have to go through this again.  We appreciate all the prayers and support you have shown our family.  Please continue to pray and leave comments on the blog.

Liz and Tom are devoting all their attention and time in an effort to determine the next best step. This is an extremely stressful and difficult time and although they love you all, the best way to show your support is to leave messages for them on the blog.  They are just unable to reply to texts and calls right now.

Below is a picture of Miss Julia Joy



8 comments:

  1. Love you all ❤️ Praying for Julia every day.

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  2. We are praying for Julia, Liz and Tom.

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  3. I love you all and I'm here for you in anyway that I can. Praying always. Love, Megan

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  4. You are all in our thoughts and prayers. With all love always, Aunt Jo Ann and Uncle Michael XO

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  5. Sending love and saying many prayers for Julia and the entire family.

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  6. Lizzie & Tom, Julia Joy is so beautiful, even in an ultrasound photo. You are in our thoughts and prayers every day.

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  7. Dear Liz and Tom, may you receive all the love, fortitude and patience you need to endure it all for your beloved Julia.

    May we be assisted, we beseech Thee, O Lord, by the worshipful intercession of Thy glorious Mother, the ever-Virgin Mary; that we, who have been enriched by her perpetual blessings, may be delivered from all dangers, and through her loving kindness made to be of one heart and mind: Who livest and reignest world without end.
    Amen.
    (Prayer for the Intercession of the Blessed Virgin Mary)

    Your family is in our hearts.
    Love, the Colon's.

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  8. Liz and Tom, We are praying and thinking about you guys all the time.

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