Thursday, June 9, 2016

Julia's third week

Julia has surprised everyone once again. We have postponed her transfusion twice now because her blood count has leveled off and has been stable. We've been told that her number, while still a bit low, isn't low enough to significantly impact her growth. Tomorrow we check again. Each time we check, she loses a little bit of blood, so we are trying to space out the sticks.

We've almost given up trying to make sense of it all. On one hand, there's frustration of not knowing what's going to happen. On the other hand, she's doing just fine - our little nicu rockstar - living and breathing and happy.

We have noticed that Julia has become more tired this week. Sometimes she falls asleep during feeds and requires her NG tube for feeding. Her fatigue could be due to her anemia or just prematurity catching up to her.  Even though she's 3 weeks old, she should still be in the womb for 3 more weeks. We are constantly reminding ourselves how well she's doing despite her anemia and being born 6 weeks early.

Please enjoy another video of our little trooper!


5 comments:

  1. Julia is already looking so much bigger in the pictures in the video!

    Christine

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  2. Thanks for these adorable videos! Love them💕

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  3. I love these update videos and photos. Please keep them coming! She is beautiful and I love her sweet smile while she sleeps!

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  4. Absolutely amazing Julia Joy, and your mommy and daddy! All my love, Aunt Jo XOXOXO

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