Friday, June 3, 2016

Julia's second week

Julia's blood count has been trending down over the last week. She has a big group of hematologists from the children's hospital who follow her every day. She's their tiniest patient. Only time will tell how her ability to make red blood cells will react to this drop in hematocrit.

Despite this news, we are still remaining positive. She hasn't shown many clinical signs of her anemia yet so we are holding off on transfusing.  She appears healthy and well, she's a bubbly baby that smiles often and loves cuddling. A few days ago we heard just how powerful her lungs can be when her cry reached a decibel we haven't heard before. Burping did the trick. You would really never guess just how sick she was in those early days in utero with how she looks and acts today.

Julia's had quite the journey so far. The tears in our eyes well up often. We have been allowing ourselves to truly imagine a life with her. And it feels good. The nicu is a tough place to be sometimes. We can't wait to go home.

We hope the best is yet to come.

Enjoy Julia's second week of memories,
Xoxo
Liz and Tom


4 comments:

  1. Maggie and I love these videos!! Maggie has requested a photo with Julia and Uncle Paul. She misses Uncle Paul! :) We are so happy to hear that you are all doing well! Miss you and love you!

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  2. Yay! I'll let Uncle Paul know he needs to come visit miss Julia :) miss you guys, kisses from all of us.

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  3. So amazing!!! Tears! I wish I could see her in person! It's breaking my heart! Love you guys so much ❤️

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  4. Absolutely love the video. Especially her smiles. Love you, Julia!!!

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